sleeping disorder, zombie, microsoft paint
Story Time! Danika 2509 views

Reviving A Zombie [Part 3]

< Part 2

If this is your first introduction to this series, here’s what you need to know: It follows my journey of getting professional help with my sleeping troubles. The intent is to give you insight into my experience, both through what is done and what it takes and with my thoughts & realizations along the way. If you do not struggle with sleeping yourself, this can still provide you an understanding of what someone you know who doesn’t sleep well goes through, or it will hopefully motivate you to conquer the aspect of your life you’ve been neglecting to improve too.

05.05.22

I am in my third week at my new job, and already, I’m experiencing losing myself and crumbling back into the tired, useless version of myself that I was before I was let go from my last job. I’m starting to stagger through each day, forget my mornings, struggle to stay focused and alert… 

I’m fighting to get myself to do anything after work and if I don’t have a good reason, I don’t do anything at all.  

I’m so tired… Like, exhausted. I zone out in the middle of conversations, and I often find myself not laughing at a joke I would usually pick up on right away and find funny. It’s as if I’m not even here. 

I’m worried. 

I still haven’t heard from the sleep clinic that’s supposed to contact me… My doctor’s appointment was two months ago! I need help. I don’t know what to do. I need my quality of life. 

I am glad I put so much effort into planning out my blog while I had time off. I’m glad I took as much time as I could to prepare, and I’m grateful for all that I have ready and scheduled, but I’m worried it’s not going to be enough. I wish I could have prepared six months’ worth of content… I’m finding myself only having the energy to write after work on the weekends, and oftentimes, my weekends are busy and full, so I don’t have time to write then either. At this rate, I’ll catch up to all I’ve prepared and find myself in the same place I was before, and I don’t want that. I want my website to blossom and continually have new content on it.  

One saving grace I do have is that we’re required to take an hour lunch at my new job, and I have been using that time for my website. In fact, I’m writing during my lunch break now! At least I have that every day, but it’s not going to be enough, not with everything there is to do for my website…  

An hour lunch isn’t enough time to write all my pieces, take photos for my posts, keep interaction and engagement up on my social media platforms, edit my posts, schedule my posts for my website and for social media, edit photos…. The list goes on. 

All I want is to get regular quality rest and to have enough time and energy to invest in my website, is that too much to ask?!  

Sigh. I’m scared. Come on, clinic, call me! 

06.08.22

I called my doctor’s office yesterday to inquire about not getting a call from the sleep clinic yet. Yeah – they still haven’t reached out! I know I was told in the first place that it could take a while, but damn… It’s been three months! You would think by this point, I would have at least heard something like, “hey! Just want to let you know we have received the referral. We are booked for x number of months, but you should know you are in our roster!” …or something! 

I called yesterday, and the receptionist told me that within the last week, they had sent a fax to the sleep clinic they referred me to to check in as well. I suppose they also feel like it’s been a while. The receptionist also provided me with a phone number so I can check in again in a week if need be…  

I also finally found out which sleep clinic they’re sending me to – and one thing that makes me nervous is that this particular sleep clinic seems to focus a lot on sleep apnea. Hell, in my research beforehand, I found that many sleep clinics tend to hone in on sleep apnea, and that has been something that has made me nervous for a while, because I’m confident that whatever I have, it’s not sleep apnea. I’ve done a ton of research on it on my own time, and so much of what qualifies for sleep apnea doesn’t align with who I am or the symptoms I experience.  

I’m nervous about this because I’m worried that this will just be another bridge between where I am and where I need to be, and that it’ll end up taking longer to find my resolution as a result. Shame on me for starting this process so late – in terms of how long I’ve been experiencing sleep issues for – because I’m desperate for a fix, and I long for it to be swift. As time goes on, life gets so much harder…  

I’ve been so tired lately. I know that must seem like a give-in, but Dear Lord… In the short period of time I was without a job, I forgot how significant the impact was on me through the workweek. I’ve reverted to feeling like the weekdays are meaningless, and that it is nearly impossible to get anything done because I’m so tired after work, and there isn’t enough time to do anything before bed…  

It’s getting increasingly more difficult to get out of bed in the mornings. For the first couple of weeks, I was early for work, and it felt easy to be early for work. Now, already, I’m struggling to get out of the door on time. I just wake up so exhausted! My head is so heavy in the morning, and I can’t make anything make any sense for a good long time after finally waking up.  

thoughts that keep you awake at night

Through the days, I drag myself. The first couple of hours after the caffeine kicks in isn’t so bad, but as soon as that novelty wears off, it takes everything in me to carry forward through the day until bed. I don’t know what to do. 

I have been experiencing something… new, though. Lately, I seem to sleep through the night. I mean – I don’t have many memories of waking up throughout the night, but the thing is… I’m not any less tired. It’s as if I just close my eyes and turn off my thoughts – or at least my memories of my thoughts – for six to eight hours, but I’m not actually resting at any point. So lately, I’m getting all the sleep with none of the benefits of sleep.  

It doesn’t feel like I’ve slept through the night when I awake, but… I don’t have any memories of moments throughout the night the way I typically do. It’s really feeling like I can’t win.  

I just want to get better. 

10.20.22

I called my doctor’s office again in July, I believe, and they said it would be “at least” another month until I heard back, that the waiting list was long. Well, here we are in October, and I think I finally got the call two days ago? If memory serves me correctly? (Which, don’t count on it – memory has been one of my most prominent struggles with lack of sleep.) 

But – I finally got it! My appointment isn’t for another three months… January 10. Just as a reminder – I got my referral in March. So, it will be almost an entire year from referral to actual appointment. Which sucks! For further context – I’m in Alberta, Canada, so maybe this time frame will look a little different for you depending on the healthcare system in your part of the world. 

Regardless, it does feel disappointing and honestly, if it wasn’t such a burden on my life, this alone could have been enough for me to give up. It’s difficult enough trying countless ways to just get some sleep as it is… It’s incredibly demotivating to finally step up to the battle and have it take so… long… I’m tired. I’m tired of being tired, and I’m tired of waiting to fix being tired.  

Oh, and it’s gonna cost $800 – uncovered – for the consultation, the actual appointment, and the single follow-up! Fun! 

I also recently found out that my mom had tried calling a sleep clinic back when I was in high school. She might have told me about it back then, but I have zero recollection of it. She said she emailed several times over the course of a year-ish, and never heard back, so I guess I’m having better luck my second time around – despite not remembering my first. 

I had some things I wanted to bring up for this entry to this series. Not long after the last time I wrote, my boyfriend asked me an interesting question. He asked if I was excited to not miss out on the mornings anymore. This is an interesting question for me because I have serious FOMO. (Honest – ask anyone I know, and they’ll attest. I loathe missing out.) And what was interesting about this question was that my instinctual answer was no.  

I’m not excited to stop missing out on mornings because in retrospect, despite all the times I worried about missing out on everything ever – bouncing around at parties because that conversation sounds more fun, or being torn on weekends because I was invited to more than one thing at once, or impulsively spending money on an experience because what if I don’t get this opportunity again, or raising my hand to volunteer before I even know what I’m volunteering for… The list goes on. Despite all of that, in hindsight, I guess I never really felt like I was missing out on the mornings!  

The only instances I can think of that I ever felt like I was: was when I had spent the night at someone’s house, and I woke up hearing laughter coming from another room. Mornings for me have always been my time to sleep and have always felt like my only time to sleep. If I’m in a truly deep sleep – on the rare occasion that it seems to happen – you can bet it’s probably between 8 and 11 in the morning. So, I guess subconsciously, I’ve written off mornings as part of the day in my head. Although I must admit, his question has really sat with me. (Clearly, I’m talking about it now several months later. It’s not like I had this written in a note as a reminder to write about, it just got me) And I wonder if I’ll find myself glad for my times in the mornings once (if) I get to have the sleep to appreciate them.  

I wonder if I’ll start feeling FOMO over the thousands of mornings I did technically miss out on all the years prior. Right now, I still stand by my original answer. I don’t feel like I’m missing out. But to be fair, I’ve never enjoyed mornings. My eyes hurt, my stomach hurts, I can’t focus, I can’t think, I can barely form a sentence… Driving to work has been more of a struggle lately. (Yikes.) I can’t eat, caffeine does nothing to aid me, I’m foggy and delirious… Even when I’m a part of something good in the mornings, I don’t really enjoy myself because I’m not myself enough yet to appreciate it. Mornings feel gross to me. They sound unappealing. So, my answer stands. However, keep me up until 4am on a warm summer night, and you’ll never find me in a happier state!  

A side-step thought I have sometimes is – what if I was to just bloop to Australia? Would my sleeping pattern become normal because it would match the range of time I need sleep in? Or would it shift to be just as messed up as it is now in their time zone? Or would it be sort of a gradient shift from one to the other, and if so, how long would it last? That’s just a side-step. One of those 2am thoughts that has probably kept me awake before, I’m sure! 

I have a couple other things I wanted to mention here too, and I do want to mention them really quick because I don’t know if there’s value of me speaking about this until my appointment – unless something drastically shifts with my quality of sleep as it is – so I want to make sure I’ve covered all my pre-appointment thoughts before we get there. 

One I want to get out of the way is that I’ve noticed that my sleep pattern seems to worsen in accordance with my menstrual cycle. (Gross, I know, stay with me.) But this information doesn’t help me much because my cycle has always been abnormal. All it really tells me is: could this be a factor? I only noticed it within the last few months, as I mentioned, but it made me realize that looking back, it’s been existent for a long time now. For instance: I looked back and read what I had written in this entry earlier and where I was talking about how I was sleeping through the night. And while I still wasn’t getting the quality of sleep I’m after, that was in my not-so-red time. Last month, however, totally different story! I had abmormal even for my resting state of abnormal and I was experiencing “period” symptoms for basically the entire month. And my sleep suffered. I mean, it really suffered. I do not remember the last time it was as bad as it was through September! I was barely human; hallucinating, forgetting why I walked into stores, (almost) buying (saved myself) things I don’t need or want, I slept in an hour and a half on a workday… So much. So many things. I don’t even know how to get into it all, I felt out-of-body the entire month and God damn was I exhausted. I really struggled through the month of September! But – it did an immaculate job at underscoring my cycle theory, and now I must remember to bring that up when my appointment comes around. 

This one is smaller: I’ve found myself more desperate for some kind of sleep schedule maintenance, and I stumbled upon a company called MUD/WTR. They make coffee alternatives and warm-drink-sleep-aids made of mushrooms, and I bought a 1-month trial of each that should be coming Monday. The morning drink has a fraction of the caffeine as a cup of coffee does, (although I drink steeped tea regularly now and that already cuts the caffeine down,) but it also has a bunch of mushrooms that are supposed to provide a natural energy that lasts longer than the effects of caffeine. The night drink has other mushrooms that have sleepy properties. I’ve been wondering if this might be the magical thing that helps me start a sleep-schedule-maintenance-program, and once I get started on these ideas, I feel like I have to see it through, so I’m going to start that next week! I will write about my experiences, but it probably won’t be a part of this series, although I might mention it here again in the future if it does do anything for me. There are two things I want to expand upon from this paragraph. 

The don’t drink coffee thing. I never really enjoyed coffee as much as other people seem to enjoy coffee. I grew up around people enjoying coffee – my mom’s an addict. (She’ll say otherwise.) But I grew up watching pot after pot get brewed and poured and enjoyed…. I’ll say ‘enjoyed’ again: enjoyed. However, I never really got it. Coffee is okay sometimes. In fact, there are times I really enjoy it! I ran out of tea for a week or two last month and because I’m not adult enough to be equipped to remember to buy more, I was drinking my boyfriend and his brother’s coffee to bide the time. It had been so long since I had coffee that it was so good! But that’s a very rare case. It happens on occasion.  

Earlier on, I really didn’t drink coffee. Especially while I had night-time jobs. I woke up late enough in the morning that I didn’t really feel like I needed caffeine (those golden 8-11 hours I got to sleep!) And I relied on coffee for caffeine only on days that I really felt tired, or that I had something important to do that I felt I needed to be alert for. But most of the time, I wouldn’t drink it. If I wanted caffeine, I was far more likely to reach for a can of Pepsi. (I had a Pepsi borderline-if-not-definite-problem for a long time.) But never coffee. Never really cared for it. 

Can't sleep, eyes wide, counting sheep

Only when I started working the regular 9-5 type jobs did I start really relying on coffee. It wasn’t for the taste or the smell or the feeling of a warm drink or any of those things, it was just for that little boost to hopefully keep me going. You don’t know how much I mean that. I got in the habit of diluting my coffee with enough creamer to cool it down so I could chug it. It wasn’t about enjoyment – ever. Again, not that I hated it – I’ve been known to enjoy the occasional mug, but – just not really my thing. Also, it felt weirdly…. heavy (and I don’t mean because of the 11 pounds of creamer I shoved into it.)  

Coffee gave me a kick for a while, but then it just stopped. It always filled my stomach with butterflies, but there came a day somewhere down the line that that was the only effect it had. I would barely feel any less tired, and I would be overwhelmed by these butterflies. Too many butterflies! I am a person who loves the sensation of butterflies in their stomach, and I can’t handle the amount coffee gives me. It’s unbearable and it makes me feel… claustrophobic? I think? I don’t know, I can’t really pinpoint the feeling, but it’s uncomfy. 

Then, later, I developed anxiety. I was diagnosed in 2016 and then, the effects of coffee got worse. Still, I drank it in the mornings when I needed to be awake for the mornings. 

Fast forward – my sister introduced me to steeped tea. Not as much caffeine, no heavy feeling, I genuinely enjoy it and look forward to drinking it, no overwhelming butterflies. So that’s why I drink that now. It still has that problem where it doesn’t do much for me, but it does enough to get me to at least have some kind of speed when I get ready in the mornings, so I’ll take it. I’ll still drink the steeped tea once the MUD/WTR arrives, but now I have put all this accidental pressure on the MUD/WTR product being the fix for that energy I’m seeking; the one that caffeine doesn’t provide me (anymore?) 

This all brings me to the last thing I want to bring up: I think I’m doing myself a disservice. I think that I am beginning to set myself up for failure. Not regarding my sleep quality, but regarding who I’ll be once I’m awake. It’s almost like it’s a fantasy that I have put all my faith in. Sleeping well has become my: “Once I…”  

We all have them, or at least have had them. That thing that is your supposed hurdle. “Once I _____ then I will _____.” I have spent so much time wondering who I’ll be once I get a good night’s sleep that I think I’m starting to over-do it. I think I’m starting to create – and believe in – fiction. That scares me! On top of that, I think I’m subconsciously doing less now because of this belief. “I can’t because I _____” as the mirror image of my speculative future.  

I do less and less of what I enjoy every day and when I think about it, I just figure, “I’m too tired. I can’t. I don’t have the energy. But, once I start sleeping well, I’ll be able to.” 

The “can’t” extends further than what I am comfortable with, and the “once I” extends into the make-believe. Like I think I’m going to be a super-genius who can suddenly do all of the things and have photographic memory and telekinesis – once I can actually sleep! 

I did exaggerate a bit, (I think,) but it’s not far from what I’ve been feeling. I think I’ve been barricading myself more, and I’m worried I’m creating a recipe that will result in disappointment in myself once I do get all these issues turned around. I have begun putting so much pressure on my inability to sleep. It is what I blame for all my mistakes and shortcomings now, and the erasure of it is what I am believing will cure all my faults. It’s terrifying.  

I know who I want to be. If you’ve been following my content for a while, (although most of it isn’t formatted like this if you’re new here – just have the right expectations,) I want to be the version of myself that I love the most and am the proudest of. I say that a lot for many reasons, among which one of them is that – we change our idealistic version of ourselves a lot. A lot a lot. This idea of conceptualizing who I should be seems the most true and reasonable to me. It isn’t putting pressure on myself to be any specific sort of way, it’s just “would I love myself more if I…” or “Would I be proud of this if…” etc. It takes the fantasy out of it. Yet here I am – injecting fantasy into my greatest self. My rested self. She is amazing – in my eyes. I am not by comparison. I am a fraud and a failure, and I am faking all of it – by comparison. I don’t like that. Thinking like that scares me and it makes me sick. 

I guess I have a final thing to bring up, and it is something I have brought up before – even in this post, I believe, and that is my memory. I knew it had been suffering a great deal, but I was recently confronted with a circumstance that shed light on just how prominent it is.

Sleeplessness collage

I had watched Haunting of Hill House when it first came out, not as soon as it came out, but probably the year it did? Anyway, I just did a Google search and that told me it came out in 2018. 2018! That was four years ago! And here’s the thing: I loved that show. I was intrigued by it because I was curious about how they would stretch out a horror into a series, and I loved everything about it. Fast forward, and my boyfriend and I watched Haunting of Bly Manor (last year?) because I saw Hill House and so I figured I’d love Bly as much, so I got him to watch it with me. He had never seen Hill House himself though, and I wanted him to, so I got him to watch it with me this year- last month? Had to be last month. And here’s the thing: Remember, I loved that show and it’s only been four years.  

The only thing I remembered about that show going into it and as we watched it was 1) I remembered loving it, and 2) [and VERY small spoiler here, but if you’re not into spoilers like me, just skip to the next bolded brackets if you haven’t seen it] small spoiler starting now: I only remembered that the guy with the mustache fixing the clock wasn’t real. This is the end of the spoiler and I’m just writing a tiny bit of filler to help anyone who hasn’t seen it before I get to the brackets. [Okay, spoiler over, you’re free to continue] But that’s literally it! I remembered nothing else; not the characters, not the plot, not the storyline, not what the actors looked like or who they were, none of the jump scares or the more pivotal or reaction-inducing elements of the show… nothing. Like, zero.  

I know I’ve mentioned this before, but that is not what I know my memory to be at my natural resting state! I cannot tell you how heartbreaking it is to watch a show that you loved – at most 4 years after you watched it the first time around – and watch it as if for the very first time. Like, I feel like I can’t even express how little I remembered. You may think I’m being hyperbolic, but genuinely, it was if I had never seen it. Nothing even felt familiar. I was just as surprised as my boyfriend by every event that happened in the show. It terrified me! Not the show. Well… But I mean, Just the fact I had nothing. It is such a disgusting and heart shattering experience. All of it was gone. And I didn’t understand how. I’m too young to have gaps that big. I hate it. 

 Honestly, I wish I didn’t have to wait any longer for my appointment and for my diagnosis and for my plan to being better because I am afraid of the fix all fantasy going further. At least for now – I’m aware of it happening. And – NONE of this is me trying to be dramatic or supercilious or anything of the sort, I don’t know if that’s coming across or not. It’s just genuinely so unsettling. I feel like I’m watching myself fall apart.  

The worst part is, in terms of feedback there are two boats, and both are (unintentionally) feeding that fantasy. One is: people who know me see that I struggle with sleep. I will mention things like “yeah, I like being up late,” or “haha, yeah, I’m still awake! Quirky!” But I don’t call attention to how much it falters me – typically. And people will get to know me and see how much I’m burdened by it – just from an outside perspective, so I’ll hear “you need sleep,” or “you should see someone” or “have you tried…?” And that will reinforce the idea that sleep is the be-all-end-all fix.  

On the other boat, we have people who don’t see it. People who don’t know it so well and just see my day-to-day actions. My silly mistakes, my forgetfulness (that truly never existed before, I had a memory of an elephant, I swear it!) Or my gaps in my ability to grasp things, and in their eyes, I’m not doing enough. “I can see your value/effort/ethic’/whatever else sometimes, but then sometimes it’s like, you make these mistakes that don’t even make sense. You’re better than that, I know it. I’ve seen it. Apply yourself.” Or whatever version of those kinds of phrases. And yeah, you’re right, sir or ma’am. But that – at no fault of theirs – is also feeding the “I’ll be fixed when I sleep” belief, because I know that’s the biggest burden or hurdle or downfall, and I feel like it’s an excuse, so I refrain from saying it, or I’ll mention it casually… But I’ll think “I’ll show you. Once I sleep well, you’ll see what I’m capable of.” And it’s like…. Will I? Or am I setting myself up to be disappointed in myself. Not very version-that-I-love-the-most-and-am-the-proudest-of of me.  

This whole thing… It’s getting to be so much pressure. I just wanna sleep. I want to know who I am when I do, and I don’t want to set up unrealistic expectations for her. I just want this chapter to be figured out and done with so I can conquer my next hurdle, then the one after that, and so on. Mostly, I just want to sleep.  

I just want to know what it is that I want. 

One last thing I want to say before I depart is this: I know this entire compilation of entries seems very complain-ey and woe is me, but that’s not my intent. I wish to reiterate my intent with this whole thing before I sign off because I think it’s important.  

My greatest personal value and arguably the focal point of my entire website is that I believe in fighting for happiness and that I think it takes work. I spend a lot of time here talking about what I think “you” could or should do to improve your life, and I wanted to take the time to confront one of the areas of my own life that I’ve been neglecting to demonstrate what my values mean to me. I’ve tried battling my mysterious sleep disorder in the past and at some point, I gave up. I abandoned it and I turned a blind eye. I’ve faced consequences for it as you can see plainly in these entries.  

Now, I’m going toe-to-toe with it. Enough is enough. I’m practicing what I preach. My hope is that for those that are struggling with sleep like I am and are considering their options can get an inside perspective on what to expect, or to feel less alone in the challenges they face day to day as a result of a lack of sleep. My hope is that they will find comfort, and hopefully motivation to fight their own struggles with this post.  

My hope also extends to those that don’t have sleeping disorders, as that is a drop of water in the ocean of things I talk about on my website. Whether it’s sleep, or trauma, or grief, or whatever else. Whatever else! My hope is that showing you that even in just this way that I am still and always fighting for myself, that maybe you might too.  

I hope this doesn’t sound corny. I don’t want to sound like any run-of-the-mill motivational speech. I just have this belief that our best chance of seeing the greatest version of our world is if all of us always fight to be the version of ourselves that we love the most and are the proudest of. I hope that if I show you that I’m taking steps, you’ll take your own. I want more than anything for everyone to be happy, and I’m not detached or delusional enough to believe it’s entirely possible, but it rests heavy on me all the same. 

 When I see broken eyes behind forced smiles, all I want is their happiness. Even more than my own, most often, I want others to be happy. And I know it’s a journey to get there. I know it’s hard work and that it’s exhausting – because I do it every damn day. I just hope to show that putting in the hard work actually does something. Despite my disappointments with how long this particular first step is taking, my worries about my memory, and all the other things… I want to show that it does get better when you truly try. 

Also, October me to May me: Your blog is behind.  

 

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5 thoughts on “Reviving A Zombie [Part 3]

  1. Jen

    I love reading about your journey. I suffer from anxiety induced insomnia and it’s really a struggle sometimes.

  2. Nimoramsey

    This a great and informative post.I learned more about sleeping disorder

  3. Fransic

    This is an interesting journey, I didn’t have this disorder but good to know about it. I had my eyes and went to doctor appointment a lot of times.

  4. Lindsey

    I appreciate your transparency in sharing your journey and your sincerity in wanting to help others. I wish you the best in your life and look forward to reading more!

  5. Sassy Owl Saves

    Thank you so much for sharing your journey!

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